Ehlers-Danlos Syndrome (EDS) is a group of inherited disorders that affect connective tissues—primarily the skin, joints, and blood vessel walls. Individuals diagnosed with EDS may qualify for disability benefits if their symptoms are severe, long-lasting and impact their daily life. The impact of EDS on individuals varies widely, with symptoms ranging from mildly loose joints to life-threatening complications. For many, EDS can significantly affect daily life, including the ability to work. This post will explore whether EDS qualifies as a disability under the guidelines set by the Social Security Administration (SSA) and what that means for those seeking disability benefits.
Understanding Ehlers-Danlos Syndrome (EDS)
Ehlers-Danlos Syndrome encompasses a variety of subtypes, each with its own set of symptoms. The most common form, hypermobile EDS (hEDS), is characterized by joint hypermobility, frequent dislocations, and chronic pain. Other types, such as vascular EDS (vEDS), involve more severe complications like fragile blood vessels, which can lead to life-threatening internal bleeding.
EDS affects the connective tissues that provide structure and support to other tissues and organs. As a result, those with EDS may experience a wide range of symptoms, including joint instability, chronic pain, stretchy or fragile skin, and issues with internal organs. The severity of these symptoms can make everyday activities challenging and, in some cases, impossible without assistance.
The impact of EDS on an individual’s ability to work depends on the severity and progression of the condition. Some people with EDS can manage their symptoms and continue working with accommodations, while others may find that their symptoms make it difficult or impossible to maintain employment.
Is Ehlers-Danlos Syndrome Considered a Disability?
To determine whether Ehlers-Danlos Syndrome qualifies as a disability, it’s important to understand the criteria used by the Social Security Administration (SSA). The SSA defines a disability as the inability to engage in any substantial gainful activity (SGA) due to a medically determinable physical or mental impairment that has lasted or is expected to last for at least 12 months or result in death.
For EDS to be considered a disability, the condition must significantly impair a person’s ability to perform basic work activities, such as sitting, standing, walking, lifting, or concentrating. This impairment must be well-documented and supported by medical evidence.
EDS can meet the SSA’s criteria for disability if the condition is severe enough to prevent the individual from maintaining gainful employment. For instance, frequent joint dislocations, chronic pain, and fatigue could make it difficult for someone with EDS to perform even sedentary work. In such cases, the SSA may recognize EDS as a disabling condition.
However, because EDS is a complex and variable condition, it is not one of the medical conditions that automatically qualify for disability benefits. The SSA will evaluate the severity of the condition, the effectiveness of treatments, and the impact of symptoms on the individual’s ability to work.
Qualifying for Disability Benefits with EDS
Applying for disability benefits with an EDS diagnosis involves a thorough and detailed process. The first step is to gather comprehensive medical documentation that clearly outlines the severity of the condition and its impact on your ability to work. This includes:
- Detailed Medical Records: Your medical records should include a formal diagnosis of EDS, detailed notes on your symptoms, and information on how those symptoms affect your daily life and work capabilities. Records should also document any treatments you’ve tried and how effective they have been.
- Physician’s Statement: A statement from your doctor explaining how your EDS affects your ability to work can be crucial. This statement should include specifics about your physical limitations, such as restrictions on lifting, standing, or sitting for extended periods.
- Symptom Documentation: Keep a journal of your symptoms and how they impact your daily activities. This can provide additional evidence to support your disability claim.
One of the challenges of applying for disability benefits with EDS is that the condition is not explicitly listed in the SSA’s Blue Book, which is a guide used to determine if a condition qualifies as a disability. As a result, you will need to demonstrate that your EDS symptoms are equivalent in severity to a condition that is listed in the Blue Book.
Additionally, many applicants face challenges in getting approved for benefits due to the variable nature of EDS. Symptoms can fluctuate, and the condition may not always present with the same severity. This can make it difficult to prove consistent disability. To overcome this challenge, it is essential to present a well-documented case that clearly shows the long-term impact of EDS on your ability to work.
Additional Support and Resources
Navigating the disability benefits process can be overwhelming, especially for individuals with a complex condition like Ehlers-Danlos Syndrome. Seeking professional legal advice can be invaluable in ensuring that your application is as strong as possible. A disability lawyer can help you gather the necessary documentation, represent your case effectively, and guide you through the appeals process if your initial application is denied.
Additionally, connecting with support groups or organizations focused on EDS can provide emotional support and practical advice. These groups often have resources to help you understand your condition better and connect with professionals who are familiar with EDS and its implications for disability claims.
Conclusion
Ehlers-Danlos Syndrome can be considered a disability, but qualifying for disability benefits requires careful documentation and a thorough understanding of how the SSA evaluates such claims. The severity and impact of EDS on an individual’s ability to work are key factors in determining eligibility for benefits.
If you believe your EDS should qualify you for disability benefits, it’s important to work closely with your healthcare providers to gather detailed medical records and consider seeking legal guidance to navigate the application process. Proper documentation and professional support can significantly improve your chances of obtaining the disability benefits you need.
For assistance with your disability claim, including guidance on how to apply with an EDS diagnosis, contact our firm for a free consultation on your claim. Our experienced disability attorneys can help you understand your rights and work towards securing the benefits you deserve.
